Saturday, February 20, 2016
Another year passed, another Valentine's Day. Not sure how another year has gone by...
Saturday, August 15, 2015
Zoodles had a fun day of new toys, walks and treats. She received 3 giant lovies and 15 balls! Steak dinner and raspberry cupcakes followed of course. Happy birthday my baby girl!
Monday, May 04, 2015
Our Star Wars puppy turned 2 today! He celebrated with a new Jolly Egg, a steak dinner and carrot cupcakes! Happy birthday my little Chewbacca!
Monday, February 16, 2015
Monday, November 24, 2014
Friday, August 15, 2014
Zoey has had a big year. New brother, new boyfriend Teddy the Schnauzer who lives next door, trip to the beach in Florida. Happy 3rd birthday baby girl!
Sunday, May 04, 2014
Friday, April 11, 2014
Before Herschel wormed his way into our hearts, there was a Herschel before him. His half brother actually.
Saturday, February 15, 2014
Valentine's Day this year was a little different. The Boy and I are trying hard to lose weight and regain the svelte bodies we had when we met over 20 yrs ago. This means calorie counting which puts a wrench in our usual Valentine's Day tradition. Renzo wanted to scrap plans entirely but I endeavoured to find a low calorie dinner that held up to our Valentine's Day standards. This also meant that I was the only one cooking this year and we would both be eating the same meal.
After a 2 week search, I finally settled on a meal and dessert that would fit into our daily allowed calorie plans. A bonus was that it only took about 45 mins to prepare the main dish and while we ate dessert baked in the oven. This was good for my autoimmune defeated body. While the Orencia IV has been working, it sadly is no match for the Polar Vortex that has plagued us this winter. So I needed to be careful not to use too much energy or cause myself too much pain by just making dinner. It sounds silly I know but just making dinner one night, and the post dinner clean up etc puts me in bed for at least a day sometimes two if I overdo it. Renzo laughs at how exhausted I am from just making a simple meal but sadly this is my and many Rheumatoid Disease patients' reality.
For our meal I prepared Chipotle Crusted Pork Tenderloin for 206 calories per serving. I halved the recipe. It was very good although next time I will use less chipotle as it was a bit too spicy for my sensitive tummy. I served the pork with Sautéed Green Beans with Tomatoes for 57 calories per 1/2 cup and Mushroom Orzo "Risotto" for 217 calories per serving. I divided the orzo into 6 side dish size servings rather than 4 main course side servings. Total calories for the meal was a mere 480 calories and it was delicious!
Sunday, November 10, 2013
It has been a long while since I have updated regarding my Rheumatoid Autoimmune Disease. Lots of changes have occurred. I have a voice usually 90% of the time. I still have my bad days of course but it is much improved.
I have ventured into the world of Biologics. For the un Rheum initiated, Biologics are the highest level of meds available for RAD. They are medications, usually administered via injections or IV infusion that are biologically synthesized rather than chemically. They attack specific cells in the body to stop the disease process. I started Remicade in December 2012. Remicade attacks the TNF-a cells in the body. I managed to completed 6 bimonthly infusions before serious allergic reactions forced me to stop. With Remicade I was able to achieve a glorious 6 weeks of relief. It was heaven! I was quite upset when I was forced to stop and start over with a new medication. I am now on Orencia IV. I just completed my 4th infusion. Orencia is given monthly instead of bimonthly and attacks the body's T cells. It has only just started to work in the last month so I am cautiously optimistic. Unfortunately I showed signs of an allergic reaction during my last infusion so we now proceed with caution. As I am allergic to so many unidentified things, my choices for medication are limited.
With the biologics, I have been able to reduce my need for Tramadol by half. I hope to one day not require it at all but for now I celebrate this small victory. I am still on NSAID's daily, in addition to various supplements and eye drops for my accompaning Sjögrens Syndrome.
The jump to Biologics was a scary one. These medications are very expensive. Each monthly Orencia IV infusion costs just under $5,000. That is the cost of just the medication and not the IV nurse, supplies needed to infuse it etc. If I wasn't lucky to have excellent insurance, I would never be able to afford it. I again applaud Canada's Health Care system for covering all costs of the infusions except for the actual medication. My friend's in the US likely pay more per infusion as they also have to pay for the clinic visit, use of the IV nurse and of course the supplies needed to infuse. Yes we Canadians may have to wait a bit to see some doctors but I will take that any day over having to pay for my health care.
In addition to expense, Biologics have some scary side effects and possibly allergies. Biggest threat is cancer. With Orencia I am at risk for lung cancer and lymphoma, Hepatitis, Tuberculosis amongst other things. To have to weigh the threat of these diseases against the attack of the disease you already have can be demoralizing. I delayed the jump to these medications for 5 yrs partly because of the risks. But you get to a point where you just can't take the daily raging of your body anymore and are willing to do and try anything for relief. I am at that point and am please to say so far, I have been successful.